The Parkinson's International Foundation is dedicated to raising awareness of the disease by providing education and advocacy for those living with Parkinson's and their caregivers.
We provide information and support through online communities, participation at worldwide conferences, on-going health and wellness symposiums and publish a quarterly newsletter. Our goal is to empower those living with Parkinson’s to lead more fulfilling and meaningful lives.
The public perception of Parkinson’s disease is that it only affects a small group of elderly people. In actuality, the disease affects more than 10 million people worldwide across all age groups, races, and cultures. Those living with Parkinson’s are dramatically underserved by current resources. Our goal is to help people with Parkinson’s and their caregivers live a better life.
Our online support group, Parkinson's International Never Give Up, was founded in 2015 and now serves over 1,000 members from 36 countries. It's a community for people living with Parkinson's and their loved ones to meet and share experiences. You can join our group by clicking on the link or if you’re already a member of Facebook, search for Parkinson’s International Never Give Up.
Our Facebook page, Parkinson’s International Foundation, was created in 2018. Please “like“ us and stay in touch with the latest research findings and interesting happenings.
Recently, we have created a Facebook group called Parkinson’s Creatives, where incredibly talented artists (ie: photographers, painters, illustrators, musicians, sculptors, glass blowers, and writers just to name a few!) with Parkinson’s Disease may post their creations for everyone to enjoy!
Despite the loss of motor skills, the artistic capacity for people living with Parkinson’s remains preserved. It’s believed that dopamine, the brain chemical pwp's replace synthetically, is responsible for that creativity. Having Parkinson’s lowers your inhibitions, allowing you to express talents you never knew you had. Whether you have a neurological disease or not, the positive impact it has on your overall health and well being is undeniable.
Our hope is that others in society will learn about the immense talents gathered here from all around the world!
*update: UK Healthcare in Lexington, KY now has a brain bank. They are the 5th brain bank location in the US.
Parkinson’s disease is a long-term, progressive disorder of the nervous system that affects movement. There’s no cure for Parkinson’s, but UK neurosurgeon Dr Craig van Horne’s experimental treatment, DBS+, is showing promise in helping patients manage the symptoms of this disease.
Van Horne is the director of the Deep Brain Stimulator Center at the Kentucky Neuroscience Institute. He focuses his research on cellular and surgical therapies for Parkinson’s Disease.
Deep brain stimulation, or DBS, is a surgical procedure that uses electrodes to stimulate areas of the brain, effectively overriding the damaged nerve’s electrical impulses and reducing many of the symptoms related to Parkinson’s disease. Dr. van Horne is testing an experimental procedure called DBS Plus, which uses a patient’s own peripheral nerve tissue to prompt nerve regeneration and slow the disease process.
Early data shows that DBS Plus has improved symptoms for some patients, and van Horne hopes it will become the new “standard of care” for treating Parkinson’s symptoms.
On this episode of the University of Kentucky’s podcast Behind the Blue, we sat down with Dr. van Horne to discuss DBS Plus, what this treatment may mean for Parkinson’s patients and how this research can impact other areas across the spectrum of healthcare.
“Ann’s enthusiastic efforts to raise money for Parkinson’s research at UK is commendable – we couldn’t achieve our research goals without the support of people like Ann. But beyond that, Ann’s leadership has ensured that hundreds of people now understand the tragedy of Parkinson’s disease and are committed to share in her fight.”
“That kind of organic, grass-roots advocacy makes a huge difference.”
[Lisa Deaton Greer, UK HealthCare’s Director of Philanthropy]
Our members share their perspectives of life with Parkinson’s, provide insight into breakthrough treatments and provide support to other members in a respectful forum.
Ours is truly a global family. If you’d like to lend a helping hand, share your story, engage in conversation, mentor someone newly diagnosed, or just hang out with people who understand, please feel welcome to join our cause.
Parkinson’s International Foundation, Inc. is a 501(c)3 social welfare organization and as such, all donations are tax deductible.
Our online support group, Parkinson's International Never Give Up, is open to people living with Parkinson’s and their loved ones. Our private group welcomes health professionals and researchers, as well. Come be a part of our family on Facebook!
Receive an issue in January, April, July & October for personal stories, tips & advice, recipes, and more!
Amazon Smiles Program
AmazonSmile is a website operated by Amazon with the same products, prices, and shopping features as Amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the purchase price of eligible products to the charitable organization of your choice.
Every item available for purchase on amazon.com is also available on AmazonSmile (www.smile.amazon.com) at the same price. You will see eligible products marked "Eligible for AmazonSmile donation" on their product detail pages.
*REMEMBER; ONLY PURCHASES MADE AT SMILE.AMAZON.COM (not amazon.com or the mobile app) GENERATE AMAZON SMILE DONATIONS.
Kroger Plus Community Rewards
If you have a Kroger Plus Card, call 1-800-576-4377 and choose option 3. A representative will ask for your name, address and Kroger Plus Card number located on the back of your card. Enroll your card for account #HU419 - Parkinson's International Foundation.
Or visit www.krogercommunityrewards.com and register #HU419 with your Kroger Plus Card. A percentage of what you spend will go to Parkinson’s International allowing us to continue providing encouragement, information, and support to our community. Enroll today!
*Enrolling in the program won't affect your gas points.
Own a black cotton tshirt with the Parkinson's International logo, rolled with a rubber wristband for a nominal donation of only $20 USD + $5 S&H in the US (Please contact us if ordering outside the US)
Get a stainless steel grey awareness ribbon lapel pin by donating only $15 USD + $5 S&H in the US (Please contact us if outside the US)
Receive a grey rubber awareness wristband for your donation of $5 USD each or 3 wristbands for $10, +$5 S&H in the US (Please contact us if outside the US)
At Parkinson’s International, we are committed to ensuring that your data is safe. We prioritize privacy and data security, and will never sell your information to a third party.
Given the emergence of new data protection laws like the European Union's General Data Protection Regulation (GDPR), we are more committed than ever to protecting your information.
Thank you for being a member of the Parkinson’s International community!!